This is the latest in the transcripts from recorded interviews I’m publishing as I talk to people who are dealing firsthand with fallout from public sector cuts and the recession around the country. I’m publishing these transcripts between longer articles and testimonies that are appearing at False Economy and elsewhere.
This is a transcript from a discussion with Trina Furre, a member of a patient advisory and support group for people with arthritis in South Devon. Trina has had rheumatoid arthritis since she was 19. In this transcript, she talks about her concerns for the NHS and fears about having to pay for healthcare and also about her support group’s battle to keep a hydrotherapy pool at Torbay hospital open.
On relying on drug therapy:
“I got rheumatoid arthritis when I was 19 – so all the way through, I’ve been under the care of rheumatology departments. I’ve been put on a very expensive new drug (called Humira) which costs about £10,000 a year per patient. It’s been pretty life-changing for me, but you know… one of the things that I’ve done with my support group is put up a forum for people with arthritis and [there are] threads that are talking about the new biological drugs [for treatment of arthritis].
“[Because the forums are worldwide], a lot of people [in other countries] are saying -“Will your insurance company cover the cost of this? Which drugs will they pay for and which drugs won’t they pay for?” There’s a whole tier of stuff that [people outside the UK] have to think about. They have to try and convince their insurance companies that it’s worth funding that particluar drug – whereas here in the UK, if you qualify medically, you get the drug pretty much. There’s a bit of postcode lottery in that it is easier to get in some areas than others – but it is just so different than living in fear that [your] insurance company is going to stop the funding…
“It’s one of the new types of biologic drugs that are now used quite extensively for people with arthritis. The down side of it is that it is a new family of drugs that is very expensive to produce and they are very expensive per patient.
“A lot people don’t know…the thing that really worries a lot of people with chronic illnesses is that if this thing with [needing to buy private health] insurance comes in, there would be no insurance that I could get. Nobody [no insurance company] would touch me with a barge pole. Nobody in their right mind would give me health insurance. It only works if you’re completely healthy and very young. I don’t know what the provisions would be if you’re already ill… Most people don’t have private health insurance and it always used to be frowned upon if you went private. It wasn’t approved of in certain circles, so the whole notion of people having to buy health insurance will be a really hard one to sell.
